Hyperemesis Gravidarum: A Diary

*All blog photos added in July of 2004.
I like the perfect 9-month archive, so
I'm fudging on all my picture dates!
BTW, time stamps aren't correct either.

UPDATE #2:
All that suffering for this...

WORTH EVERY MINUTE OF IT!

UPDATE


















Elise Today!
Sept. 2006
(2-years-old)

Mama Cass, Elise & Dr. Keanu

Fat, bedraggled mama and
Mini Me in jammies in the kitchen
(10 weeks)

Daddy and Elise
(6 weeks)

I would like to post a special thank you today to two online pals who I have never even met!

One, a dear sweet woman who just sent me a big box (and I mean BIG) of the cutest baby girl outfits imaginable (plus tupperware, PLUS my favorite Weleda baby care products, PLUS a beautiful cottony nursing gown PLUS...) and who has prayed for Elise and I for months and often sent cheering emails/im's...

and the other, a fella who defies all concept generalization by being both a New York attorney AND a rational, compassionate human being. This sneaky knucklehead really surprised me by paying for my private hospital room after the birth of little Elise. He also kept me busy with endless conversation on many dull days of bedrest.

To my special pals who have gone above and beyond to make me feel supported and cared for...

I THANK YOU KINDLY!

I don't deserve good friends like you, but I thank God for bringing you into my life.

Grinnin' and Bearin' :
I'm really on the ball in this picture...
vowing to smile through a contraction as
tiny E yells "I'm having contractions!"
while watching Spongebob on the hospital TV.

The reviews are in:

And may I be the first to say God bless Ashli and her beautiful family.
The Raving Atheist
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Congratulations Ashli!
Amanda
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Ashli, YOU GO GIRL!! Congratulations!!! I am so happy and wish I could give you and Elise a huge (and a little/gentle) hug!!
Annie Banno
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Yea!!!! She is beautiful. I am so happy for you.
Ann Marie Cosgrove
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Congrats Ashli! What a relief to know that the suffering is over. I hope that when you have the time you put up a webpage summarizing this experience so I can spread the word to others about your amazing story. I have told people about your blog but I can't do it justice when I try to explain the background info.
selma
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Ashli, my heartiest congratulations - Elise IS gorgis!
p.s. looking forward to that book, too..
Alexa
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Oh, gosh, she is SO ADORABLE!!
Emily
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Thanks be to God!
Jean
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"You know you got to go through hell before you get to heaven." ~ Stevie Miller Band.

And after reading your post ref'd by RA, I'd say you sure did, Ash. (I thought I'd posted this comment already, guess it didn't "take.") You say after only 30+ min. of praying and the prayer chain, suddenly "all was well??" I'm getting the shivers. Prayers answered, miracle indeed. Sometimes God works real fast according to *our* measure of time. He sure did reward you for your trust in Him, your faith, your suffering through what you already knew in your heart and soul was what you had to do. God blessed you too with the right hubby and the right doc (did he really look like Keanu??). Wow, wow and triple wow. Happy Moms' Day indeed!
Annie Banno
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Congrats a million times over! Praise be to God, who hears our prayers.
She's so lovely, ashli.
Cin
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Awwww, she's beautiful! Thanks for sharing the story of her birth. What a beautiful ending to such a trying time.
God Bless you and your family,
Nicole
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Congratulations!!! How are you feeling? How is Baby Elise? Please post pictures!
anon
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Hooray! Hooray for Elise! Hooray for Mom! Hooray for Dad! Hooray for God!
Please give Elise a kiss for me!
God bless you all,
anon
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Is that Elise!?? Come ON! You can't beat around the bush about stuff
like that! I've been thinking about you and Elise every day for months,
you can't leave me hangin' like this! LOL!
Is that your tummy lumpkin?!!!
WOW!!!
squeal!!
anon
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There you go again, posting late-term, post-natal fetus pictures on your site to mislead and frighten women. Shame on you.
And congratulations again!
anon
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Congrats. i bet she is lovely what a wonderful Mothers Day gift.
hope you start feeling great! thank you so much for posting your diary. i really enjoy reading it. I will continue to pray for you and your family that everything goes well for you with the new baby. i bet her big brother is crazy about her.
anon
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Ash,
Yey, congratulations to you and your family and lots of love to you and your gorgeous baby girl

I'm so, so happy about Elise. I kept thinking about her all day yesterday and calling up her picture to mind. She really is beautiful.

How are YOU doing? I almost passed out when I got to the part of the story where the nurse came in and said that weird stuff about anger.
anon
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Oh Ashli,
Elise is incredibly beautiful. I am rejoicing with you and your husband and
your son. I hope that you're on cloud nine celebrating : )
Hallelujah!
anon
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Ashli congratulations!!! Patte sent me a picture of Elise, she is absolutely beautiful, she looks just like you!!! I am so happy that all the hardship is over and you have been given the first prize for allowing God to work in you, He does have a sense of humor even though in your case it was no humor at all but a test of faith, I have been praying for you and your family through out the pregnancy and keeping up with your blog diary, you should publish it, it would help so many women. I hope you get this email from me.
Congratulations again.
anon
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Congratulations Ashli!!
Your re-cap of Elise's birth made me laugh and then cry tears of joy when I read that all was well - thank God and praise His Holy, Holy name!! You are truly blessed.
I am so very happy for you.
I saw her picture, she is absolutely beautiful.
love and hugs to you both,
anon
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Praise God, when was she born. We have not been to your site in some time now. But we have been praying for you all.

anon

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I'm a faithful, daily reader of the sicle and the diary. BUT MY PUTER WAS IN THE SHOP and I missed it.

Congratulations, she is gorgeous. That one pic is not sufficient. Please send or post some more.

I know you can appreciate this, so I'll just say it.. I'm all achy and JEALOUS! Give Elise lots of smooshy momma kisses for me and send more pictures.

---------------------------
Hey! Congratulations! Elise is sooo Beautiful! She looks so peaceful, like a little angel. I know you're busy and tired. I hope everything has gone well with the delivery and adjustments to a new baby. You really do have a beautiful little girl, I know you're proud of her, and you're happy to finally get to hold her. I know you had some hard decisions to make during your pregnancy, but you trusted God, and you obviously did what was right for little Elise!

love ya,
another HG sufferer
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Congratulations!!!

I read your blog, and just wanted to extend my heartfelt congratulations to you and your family on the birth of Elise. :-) She's so beautiful.

I'd also like to thank you for your courageous honesty about the trials you faced with this pregnancy, and all your past ones.

God bless you all, and especially Elise. :-)
anon

Click image to enlarge.

Let's go back a few days...

6:30 AM, Friday, May 7:

Another day. Ugh. Friday. Dr. Keanu would be going out of town at the end of the work day, and I would be anxious the entire weekend not wanting anyone but him to be a part of the delivery. With nothing to do about it my thoughts turned to Elise. Would I finally see the signs I had been looking for, the signs that reveal impending birth? With my son, I had a few days notice. The signs were there, and it was comforting to know the end of a long pregnancy was coming soon. With Elise, I didn't see any of the signs at all, and it was depressing, because I was ready... readier than ready.

When I woke up on Friday I was thinking about these things when I felt something. Naw, I didn't feel anything. Wishful thinking as usual.

GUSH!

Oh THAT was something! Aside from the full moon on the 4th, there had been nothing prior to my water breaking that gave me any sense that the end of suffering was near. But here it was! And unlike the trickle with my son, someone turned on a water hose with Elise. I surfed the amniotic wave all the way down the hall alerting (loudly) to my husband and son that it was most definitely time. And I was freaking. I don't know that I really ever honestly anticipated that the day would come.

The gushing was such that I worried that Elise's head was not entirely blocking the cervix... which made me worry about cord prolapse, a rare but deadly condition. What does "rare" mean to me, the queen of rare illnesses? I know two people who have had cord accidents involving prolapse and it is heartbreaking. And it didn't help that I had stupidly watched E.R. the night before with Carter's baby dying from a cord accident. So I worried... which means I got back into bed and refused to get out. My husband threatened that he would call an ambulance if I didn't make my way to the van. Gushing, gushing. Terror. I stuck a towel between my legs and crawled to the van, somehow getting in without dropping the cord through.

We went to the emergency room where they put me on a gurney and wheeled me up to labor and delivery. Room six! There they checked me out and assured me that cord prolapse would not be an issue in my case. Feeling relieved, I got up and took a shower. When my water broke with my son I had contractions immediately. I wasn't contracting very regularly or very powerfully with Elise, so the shower actually felt great!

I had eaten a huge bag of organic spinach the previous two nights in a row, and let me convey that spinach, for those who aren't aware, is a natural laxative. 'Nuff said. Except that it was green. GREEN. Kermit the Frog would have been jealous. Dr. Keanu came in the door as I was coming out of the bathroom.

"You'll thank me in a few hours," I said.
"Oh please," said he, "when do I NOT get pooped on?"
I assured him, "Yes, but if you got pooped on with THIS poop you wouldn't eat all weekend."
My husband chimed in: "Corn poop would be worse than your nasty ol' spinach poop."
I disagreed: "No way. Corn poop is chunky and solid and you can get away from it. Spinach poop is slimy and green and there is no escape."
"And with that..." said Dr. Keanu as he excused himself from yet another of our family conversations.

Before Dr. Keanu left the room he tried to convince me to start pitocin. I wanted to wait.
"OK," he reminded, "but I have to leave at the end of my shift 'cause we're going out of town."
I asked him how late he could stay.
"Oh, I'll stay. I'll stay and stay. I will stay as long as it takes! As long as... six o'clock."
D'oh!
"Oh THAT'S lovely," says I.
"Well," he rebutted, "I'll stay as long as I can... without risking divorce!"
I told him he had a choice:
"Looook, you can get a divorce or you can get killed. Take your pick."
He agreed that maybe he should at least CONSIDER staying.

I dilated to 6 cm without drugs. I asked for a birthing ball; this thing rocks. Literally. It's a big ball you sit on and it takes the pressure off your muscles and tailbone, etc. You can rock, bounce, whatever. It opens the pelvic floor muscles up and just relieves the pain of contractions very efficiently. I know, because they made me get in the bed once while I was contracting and, as we say in the South, I like to have died. "Get me back on the ball!"

After about 6 cm all bets were off. Drugs, gimmie drugs. I knew I could do it if I had to or wanted to, but I didn't have to and I certainly didn't want to. I asked for an epi and in the meantime some Stadol. Honeychile... that junk 'bout knocked me out. I didn't even get the full dose and I went down. Almost passed out on the nurse, but she got me to the bed before I zonked out. She was knuckle-rubbing my chest, the whole 9 yards. She was a little shocked as my reaction was abnormal. My husband explained how sensitive I can be to pharmaceutical intervention. I don't remember much after that. About an hour or so is gone. If I got confabulatory, I don't even want to THINK about what I may have said.

At some point the anesthesiologist came in and placed the epi. I remember not being numb and feeling the line going into my spinal space between the vertibrae. Very eerie and uncomfortably deep feeling. I jumped. He gave me more numby and re-did it. A-OK... EXCEPT that it went up instead of down. My boobs were numb. My boobs were not having a baby.

The epi didn't get into my lungs so I didn't have to be tubed, thank God. BUT the epi didn't get to my cookie either. I felt EVERYTHING.

Pregnant women will tell you that the urge to push out a baby is like taking the biggest poop of your life. They're lying. It doesn't feel like that at all. It feels like someone has stuffed a watermelon down your throat and is pushing it on through and out of the other side whether you like it or not, whether you're ready or not. By the time it gets to the "outfield" it is ripping you in half, peeling you like an orange... and someone else is holding you down and stuffing a rag in your mouth while pinching your nose saying "You can't breathe until you push this thing out, and you have to breathe to do it!" THAT'S what the urge to push and pushing feels like. At least to me.

I got cliche near the end of it, feeling that I just couldn't do it anymore. "Yes you can," doctor, student and family lied. They told me over and over how near she was to being born, how close it was to being over.

"Two more contractions," Dr. Keanu said, as I pooped green spinach on him anyway.
"That's what you said TWENTY contractions ago!" I yelled in fury.
"Look," he said, "if you don't believe me reach down and feel her big ol' head."
I barked back, "I'm going to reach down and feel YOUR big ol' head if you don't get her out of me NOW!!!"
A few more contractions, a few more pushes, a few more minutes of calling for my mommy and out she came.

And then the fun began.

The baby nurses said something was wrong. They let me hold her for a moment but then rushed her to the NICU. She was "juicy". Fluid in the lungs. The cord had been wrapped around her neck (possibly saving her from cord prolapse?) and there was some stress. She hadn't gone without oxygen, but perhaps she sucked up too much fluid and it was preventing her from getting really enough now. I cried and cried as they took her away.

Moments later they came back into the room and told me she would have to stay in the NICU over night. They said I couldn't nurse her because it would cause stress. They said they were going to put her on CPAP. This is not good. This is what preemies have to go through when their lungs are not mature and they can't breathe on their own. It can cause abdominal distention and even a pneumothorax (lung air leaked into the chest space). It's just NOT something you want. I think I remember someone even saying something about intubation. I was FREAKING. Crying, crying, crying.

Someone brought a hospital food tray like I was going to eat at that point. "Oh, my baby is dying, but gimmie some of those good ol' hospital whirrled peas, please." Someone else came in and said, "And how will you being paying for this?" and asked for my husband's credit card. Unbelievable. Crying and crying.

The NICU nurse came back in and sat on the bed.
"You need to grieve," she said. "You need to be angry for what you have lost."
WHAT?! I thought Elise had died. ((In hindsight, I suppose she was referring to the loss of the "normal" birth experience that ends with a healthy happy baby and no NICU, but at the time she gave no clear indication of what she meant, and I didn't immediately understand.)
"Is she dead? What is happening?!?"
The nurse said, "No, she's not dead."
I wanted to know if she was GOING to die then.
"I don't think so, but these things can turn into pneumonia so fast."
(There must have been a two-way mirror. Surely this was a put on.
"Watch me make this poor couple squirm," I imagined the nurse joking to her friends.)
I wanted to know when we would know one way or the other how she was doing.
"We're just going to have to watch her," the nurse said.

She left the room. Tears and tears and crying and crying. We called our pastor and asked him to pray. He called our church family and the chain of prayer was moving. My husband and I prayed alone in the delivery room. After about 30 minutes of praying the nurse entered the room with my baby saying,
"All is well, you can take your baby now."

I didn't ask. I didn't want to know. "All is well." Just give her to me! They told me she didn't have to be in the NICU, she could stay with me in my room, go home with me in the regular 48-period of time, and that this had been "atypical". Atypical, ashmypical. Gimmie my baby! Thank you, God, THANK YOU, GOD!!! For whatever reason, our prayers were answered exactly as we had hoped they would be. God is gracious, merciful and good. It isn't always easy to see that, especially when things go wrong, horribly wrong... but this time "All is well."

I took my baby home on Mother's day. A gift, a treasure, life.

--------------

This is my HG diary. Through it you got a tiny taste of what it means to suffer the severe, prolonged, debilitating illness that is severe HG. Through emails, mostly kind, I can still see that it is insufficient. No matter what I have written or will ever hope to write on the subject... if you haven't been there, it is impossible to "get". It's nobody's fault; just the human condition. I tried. I honestly did.

The HG in this my fourth pregnancy was awful. No, it was worse than awful. It was IMPOSSIBLE. You will remember a time (back in September) when I was talking turkey. Abortion.

ABORTION.

Shudder. Shiver. My lip starts to quiver.
If one or two things had been in place I probably would have done it. If my doctor at that time (not Dr. Keanu) still performed abortions I'm very nearly almost 100% sure I would have killed my daughter. I asked him if he would, but he wouldn't. He said he still believed in it but didn't feel "good" doing it himself. I could have stolen away, aborted at the local mill... but confound those "pro-life" bumperstickers on my van! I could just see them taking pictures of "pro-life Mary's" van as she aborted her baby inside. It was shameful. I could take a taxi... but no. I didn't WANT to do it. What's all this crap I've been telling people for all these years if not the truth? And how could I be sorry, so sorry for the first if I went and did it again? How could I ask to be taken seriously by God (or anyone else) when I had learned nothing? I had to find some way to tough it out.

My FIL wanted me to know early on that I could "do what I needed to do" and everyone would understand. Permission to abort. Horrible, horrible permission. My FIL was trying to be what the world today calls "supportive;" so many people offer this kind of "support." But accepting defeat, particularly when the life of a child rides on the battle, is the antithesis of support. Anything that separates the child from life is not good for the child, and anything that separates the child from the mother is not good for the mother. My husband, who understands these things, very clearly reminded me that I neither had his permission nor God's. He reminded me that God gives much and requires much. "Remain in Me, and I will remain in you." I didn't WANT to abort, but my body... it was 24-hour torture for months. I felt I HAD to put the breaks on. I wanted OUT of the devastating illness. My pastor came and talked to me. You will remember that conversation from the diary post in September. Friends who know me, one of them a staunch abortion supporter, barred me from even thinking of abortion.

And God... God showed me a way out. It was the way THROUGH, and it would be HELL, but He assured me... PROMISED me... that He would never leave me. And He never did. And neither did Elise. And "All is well."

Know that your support has been so comforting to me and your prayers have been POWERFUL. None of them have been in vain, all of them have been appreciated, all of them have been heard by our gracious, loving Father. I thank God most of all for His generous provision, and I thank you for being a part of His blessing as you supported me through the fire.

May all be well with you.

 
Guess what I got for Mother's Day!

A big THANK YOU to a special reader who totally surprised me on my birthday with a neat gift! Totally unexpected but very, very sweet and much appreciated!

I am blessed to have so many who care about me! It is humbling and beautiful.

THANKS!

I overdid yesterday. I paid for it last night when I couldn't walk without assistance. So lame. No pun intended.

I went out for pizza at lunch and saw a gal who had been one of my home health care nurses. She was my last one, and I only had her for a few days before I got my staph infection and had to go back into the hospital. She was really nice though, a Catholic who prayed for me. She also had a son who, when younger, lived on TPN for years, so she understood the madness of living with a pump that constantly moans and wheezes and screams out its alarms.

I remembered her name. I never remember anyone's name.

She was so glad to see me, and I was glad for her to see me too. It must suck only to get to see people sick and never to get to see them come out on the other side. I wouldn't think you would get really satisfying results from your work as a home health nurse. The HMO gets rid of you before the patient is really all that well again, so I would imagine that most home health care nurses are out of the picture long before the person looks fit and alive again.

My ex-nurse seemed relieved to know that Elise was alive and well. Because of my former health status, I guess there was some question. Well, OK, of course there was some question. I went through a lot.

A friend came over the other day, and we were talking about it. I started to tell her what nights had been like during the thick of it... it was just a description of living with various pumps and alarms... not the worst part of the illness... and yet, I couldn't get through it without bawling and feeling like the wind had been knocked out of me, without feeling like I wanted to run from my own words, my memories, the reality of what had been my life. And for me it had been a few months. For others with other diseases it is years. I really don't know how I feel about euthanasia anymore. I wouldn't want to go through it again.

My mom didn't want to fight her cancer with chemo like Dad did. I wanted her to. I wanted her to wage war! She just gave up. Or so I thought. She never lived with pumps or too much puking. She controlled that. She was on top of her death. My dad, after having endured chemo and such... death swallowed him. My mom's attitude was basically, "If you're coming for me, Death, then come. Don't waste my time with the mechanics, with the cat and mouse game... just get on with it." That is how she died... sitting up talking... "I'm not in any pain," she said. Those were her last words.

Anyway, it was good to see the nurse so that she could witness the healing and understand that she had been a part of it. For the tiny little corner of her mind that I occupied, she could stop holding her breath. At least that's how I always feel when I wonder about someone and their outcome. I'm a worrier. It's one of the vices I am slowly learning to give up.

Elise is squirming around ready for her morning dose of Captain Crunch. We just got our first major organic warehouse delivery since the illness rendered that type of living impractical. My tot gets the Gorilla Munchies (organic version of Cap'n Crunch), and since there's still some junk cereal left I get the real deal. I relish any excuse to eat garbage, and "I'm eating four bowls of Captain Crunch for the health of my son," is the best justification I can think of.
I console myself with the belief, realistic or not, that the placenta somehow filters out all the baddies in breakfast foods and therefore I don't have to feel guilty for pumping it into Elise.

See how it works?

And now for something completely different...

Is it me, or is Justin Timberlake really Eddie Haskell for the new millennium?

"Gee, that's a lovely dress you're wearing Mrs. Diaz."

Is human cloning already a grim reality?


You be the judge.

The moon is bunk.